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Health Directory > Support Groups > Conditions and Diseases > Facial Differences
Facial Differences

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Apert Syndrome
Cleft Lip and Palate
Craniosynostosis
Langer-Giedion Syndrome
Parry-Rombergs Syndrome
Sticklers Syndrome
Treacher Collins Syndrome
Site Listings

AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.aboutfaceinternational.org/

Acne Support Group Information and support on acne, including top ten tips, beauty tips and problems.
http://www.stopspots.org/

Beneath the Surface Offers support and understanding to individuals of facial difference.
http://beneaththesurfaceweb.com

Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/

Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
http://pages.zoom.co.uk/cell/index.htm

Children's Craniofacial Association Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
http://www.ccakids.com

Crouzon's Bridge of Hope Foundation Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
http://www.crouzonsbridge.org

FACES: The National Craniofacial Association Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org

Foundation for Faces of Children Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org

Johns Hopkins Center for Craniofacial Development and Disorders Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
http://www.hopkinsmedicine.org/craniofacial/

Let's Face It USA A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
http://www.faceit.org/

Moebius Syndrome Moebius Syndrome support, information and resource site.
http://www.moebius1.org

Sincere Meditations Born with a severe facial disfigurement, David Roche has turned his 'flaw' into a source of strength and he brings this to his audiences.
http://www.davidroche.com/lamott.htm

Support Works Online Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm

The Craniofacial Society of Great Britain and Ireland Information about the society, which is a multidisciplinary forum for specialists.
http://www.cfsgb.org.uk/

The DRM WebWatcher: Facial Differences A Disability Resources monthly guide to online resources about craniofacial differences.
http://www.disabilityresources.org/FACE.html

The New Face Foundation A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
http://www.newfacefoundation.com

The Personal Side of Craniofacial Differences Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html

XP Support Group UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk


 

 

 


 

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