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Health Directory > Conditions and Diseases > Rare Disorders > Cystinosis
Cystinosis

Site Listings

Cornea and External Diseases - Cystinosis Features photographs of an affected eye, information on clinical features and treatment.
http://dro.hs.columbia.edu/cystinosis.htm

Cystinosis Central Information about this disorder, conferences, data for physicians, updates and links.
http://medicine.ucsd.edu/cystinosis/INDEX.htm

Cystinosis Clinical Resources Portal features annotated links for health professionals.
http://cchs-dl.slis.ua.edu/clinical/metabolism/inborn/lysosomalstorage/membranetransportdisorders/cystinosis.htm

Cystinosis Foundation Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
http://www.cystinosisfoundation.org

Cystinosis Research Foundation Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
http://www.natalieswish.org

Cystinosis Research Network Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
http://www.cystinosis.org

EyeRounds.org: Cystinosis Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment. (February 21, 2005)
http://webeye.ophth.uiowa.edu/eyeforum/cases/case4.htm

The Cystinosis Foundation UK Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.
http://www.cystinosis.org.uk


 

 

 


 

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