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Health Directory > Conditions and Diseases > Neurological Disorders > Rett Syndrome
Rett Syndrome

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International Rett Syndrome Association (IREA) The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.
http://www.rettsyndrome.org/

National Institutes of Health Information in Rett Syndrome, treatment and prognosis.
http://www.ninds.nih.gov/health_and_medical/disorders/rett_doc.htm

Rett Angels Rett Syndrome forum and online support group sharing personal stories and information.
http://www.rettangels.org

Rett Language One family's experience with Rett Syndrome, Applied Behavioral Analysis and Discrete Trial Teaching.
http://www.geocities.com/pflowerett/

Rett Syndrome The Autism Research Institute distributes an information packet on Rett Syndrome.
http://www.autism.org/rett.html

Rett Syndrome Association of Ireland A support group for the victims of RS and their families. Read about the organization and the disorder.
http://www.rettsyndromeireland.com

Rett Syndrome Association UK National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.
http://www.rettsyndrome.org.uk/

Rett Syndrome Fact Sheet An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/health_and_medical/pubs/rett.htm

Rett Syndrome Research Foundation Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered.
http://www.rsrf.org

The Sarah Varon Foundation for Rett Research A family dedicated to finding a cure for Rett Sydrome. Find announcements, photos, and an overview of the disease.
http://www.sarahvaronfoundation.org/


 

 

 


 

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