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Alpha1 Antitrypsine Deficiency One man's perspective and journey with A1AD and a list of links and other resources from the internet.
http://home.att.net/~a1ad/intro.htm
Amelka's Page Amelka was born in Warsaw, Poland with a complex of congenital anomalies. Photos, history and contact. [English/Polish]
http://www.amelka.info.pl/
Ashly's Skeletal Dysplasia A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
http://www.angelfire.com/or2/ashlysworldofwonders/about.html
Caleb's Courage A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease.
http://www.geocities.com/calebwaddell/
Joy's Page Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
http://www.lebaronfamily.com
Maddy's Page The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
http://members.aol.com/kymwig
MCAD Angel Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
http://www.mcadangel.com
Mowat-Wilson Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.
http://www.mowatwilson.org
Robert Kenneth Picklesimer Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
http://www.picklesimers.com/robert_kenneth.html
Story of Robert Purkis A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
http://swpurkis.pwp.blueyonder.co.uk/index.html
Taryn's World: About Switches Personal page for kids and parents about genetic disorders, especially mannosidosis.
http://www.tarynsworld.org/taryn/switches.htm
XXXXY Syndrome Information on this rare chromosomal abnormality.
http://www.xxxxysyndrome.com
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