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Health Directory > Conditions and Diseases > Genetic Disorders > Fragile X Syndrome
Fragile X Syndrome

Site Listings

Carolina Fragile X Project A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
http://www.fpg.unc.edu/~fx/

Conquer Fragile X, Inc. Creating a virtual research center in Israel to find a cure.
http://www.conquerfragilex.org

Fragile X Association of Australia Information on this disease, medical aspects, education, references, contacts and what's new in Australia
http://www.fragilex.org.au/

Fragile X Association of Southern California Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
http://www.fraxsocal.org

Fragile X Research Foundation of Canada Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
http://www.fragile-x.ca/

Fragile X Syndrome - Diagnostic and Carrier Testing A Policy Statement from the American College of Medical Genetics.
http://www.faseb.org/genetics/acmg/pol-16.htm

FRAXA Research Foundation Home Page Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
http://www.fraxa.org/

Living with Fragile X One family's account of raising 3 children with Fragile X.
http://fragilex.ca

Maryland Fragile X Resource Group A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
http://www.mdfragilex.org/

Online Support Group Support group for Family's who are dealing with Fragile X Syndrome.
http://groups.yahoo.com/group/fragilex/

Pediatric Oncal Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp

The National Fragile X Foundation Features information about the disease, its treatment, and inheritance.
http://www.fragilex.org/


 

 

 


 

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