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Cristina's Castle in the Clouds Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
http://www.homestead.com/cristinascastle/index.html
DebRA Australia, Queensland Branch Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
http://www.debraqld.org
DebRA Canada Includes articles, news, and information about this genetic disorder.
http://www.debracanada.org/
DebRA International Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
http://www.debra-international.org/
DebRA of America Offers information, news, newsletters, support, and resources.
http://www.debra.org/
DebRA UK Features organization background, information about the disorder, fundraising and research details, and news.
http://www.debra.org.uk/
EB Info World Information, mailing list, pictures, and help for new parents.
http://www.ebinfoworld.com
EB Medical Research Foundation A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
http://www.ebkids.org/
Epidermolysis Bullosa - Through the Eyes of a Patient A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition.
http://www.ebpatient.com
International EB Forum Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
http://www.internationalebforum.org/
Yahoo! Groups: EBworld Mailing list support group for parents, patients, and those interested in learning about disease.
http://health.groups.yahoo.com/group/EBworld/
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