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Adolescents Psychological Complications of Chronic Illness Information from The Child Health Library of Children's Hospital of Pittsburgh.
http://www.chp.edu/greystone/mentalhealth/pcci.php
Bandaides and Blackboards Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories.
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
Children and Grief Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
http://www.aacap.org/publications/factsfam/grief.htm
Dealing With a Health Condition Explains teenagers how to cope, to take control, deal with others.
http://kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html
Pain and Chronic Illness in Children Short paper on the importance of pain management. [PDF]
http://www.touchbriefings.com/pdf/14/lth031_r_cowley.PDF
Parental Advise on Coping with Chronic Illness of your Child Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
http://www.parenting-ed.org/handout3/Specific
Promoting Resilience in Youth with Chronic Conditions and their Parents Paper on family centered care, describes impact, principles, assessment, healthy family functioning. [PDF]
http://www.allaboutkids.umn.edu/kdwbvfc/FamilyMonograph.PDF
Shared Vision Complete article (also as PDF) on longterm needs, financial and medical planning.
http://pediatrics.aappublications.org/cgi/content/full/105/1/S2/277
Starbright Foundation Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms.
http://www.starlight.org/site/c.fuLQK6MMIpG/b.1038035/k.BDF4/Home.htm
Teenagers and Coping with Chronic Illness Tips and strategies for parents with newly diagnosed teenagers.
http://www.irishhealth.com/?level=4&id=455#top
The Child With a Long-Term Illness AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
http://www.aacap.org/publications/factsfam/illness.htm
What is a Chronic Illness? Explains to children what their ill friend or relative experiences and what they can do themselves.
http://endoflifecare.tripod.com/kidsyoungadults/id23.html
Youth in Transition Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management.
http://www3.bc.sympatico.ca/steeksma/Medical/transition.htm
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